My Journey With Endometriosis

My journey began in February 1996, when I woke up on the bathroom floor, having passed out due to severe menstrual pain. At the time, my periods lasted for 10 days, and the excessive bleeding led to dangerously low iron levels and extreme fatigue. I scheduled an appointment with my mother’s gynecologist, the very doctor who’d delivered me prematurely at three months. I was diagnosed with endometriosis (when tissue similar to the lining of the uterus grows outside the uterus), a condition I’d never heard of before.

My Journey With Endometriosis

After mdiagnosing me, my doctor explained my options going forward:

1. Becoming pregnant
2. Undergoing a hysterectomy
3. Taking hormonal contraceptives

I opted for number 3 and began experimenting with different types of birth- control pills to find the one that worked best for me. As a reflexology student, I also explored alternative medicine to support my well-being while managing the condition. I investigated the side effects of the condition and their impact on my body, mind, and soul, developing methods to reduce anxiety and depression through relaxation techniques.

Additionally, I examined my diet, as I also suffered from irritable bowel syndrome (IBS).

Once my iron levels stabilized, I adopted a more plant-based diet, incorporating anti-inflammatory foods, antioxidants, and superfoods, to improve my overall health. Supplements, including vitamins and minerals, became part of my routine. I also received reflexology, acupuncture, and Chinese medicine treatments. For years, my symptoms remained at Stage 1.

Medical decisions and advancements

At the age of 36, I discontinued the pill after 16 years due to severe side effects. My gynecologist recommended stopping all hormone therapy to allow my body to detox. Two years later, I was introduced to Visanne, a medication specifically developed for the treatment of endometriosis.

Over the years, medical advancements have improved treatment approaches, and Visanne was designed to suppress estrogen while increasing progesterone, ultimately halting the menstrual cycle. I used the medication for two years. By that time, my periods had stabilized, lasting seven days, with predictable monthly cycles.

However, in August 2024, at the age of 48, I was diagnosed with Stage 4 endometriosis, which was likely triggered by the stress of caring for my now-late father following his stroke. Once again, my gynecologist proposed a Visanne-based treatment plan to manage symptoms until surgery became necessary.

Research, wellness, and holistic approaches

I delved into extensive research via social media, studying insights from medical professionals and other women navigating endometriosis. I examined updated findings on incorporating wellness and health strategies, focusing on:

• Gut-health management, due to IBS
• Hormonal balance to support overall well-being
• Lifestyle adaptations to live fully despite chronic illness

Endometriosis has no cure. While surgery may help to manage symptoms or remove affected tissue, the disease affects the entire body, leading to complications such as digestive issues, chronic fatigue, and inflammation.

Listening to one’s body and prioritizing rest, recharge, and relaxation is crucial. Activities that support healing include:

• Nature walks, whether in the forest or by the ocean
• Yoga, to stretch and ease physical tension
• Dancing – to boost mood and release endorphins
• Swimming, in pools or natural waters, for full-body relaxation

Who is the author?

Grainne Hartley is a health practitioner specializing in alternative therapies.

Through education, research, and community support, she hopes to empower others living with endometriosis and contribute to the evolving conversation around holistic health and medical advancements.

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